Living with cystic fibrosis (CF) can be challenging, but it doesn’t have to stop you from going to school, having a family or getting a job. Find out how the Cystic Fibrosis Trust can offer you the support you need to achieve all that and more. Have a look on our web site
New diagnosis: Welcoming a new baby to the family is an exciting time, but a diagnosis of cystic fibrosis can feel daunting. We worked with parents who have been through the diagnosis of CF to create a video and new parent pack.
Pre-school and primary school: Starting pre-school or primary school can be an exciting and daunting time for parents, particularly if your child has cystic fibrosis. Whether you’re a parent, or a teacher expecting a new student with CF, the information in our primary and pre-school pack is full of useful information and real-life examples of how other people have managed the transition, with top tips for making the journey as smooth as possible.
Secondary school: Our secondary school guidance includes a pack with loads of useful and interesting information on developing an individual health care plan, managing treatment and infection control, dealing with absence, and an ‘Ask the psychologists’ section, and we even have a magazine for young people!
Leaving school: Cystic fibrosis doesn’t have to hold you back from following your dream of continuing your studies. Explore our leaving school booklets for people with CF and their families, and download our booklet for training providers, colleges and universities.
Family planning: If you or your partner have CF, and you’re thinking about having children, you might be grappling with a number of issues. Our family planning booklet contains information to support you in thinking through the issues in relation to you; your health, your life, your hopes and fears.
Work: More people with CF are in employment than ever before. There are some important considerations when you’re looking for a job, such as your own safety and what your rights are in terms of disclosing your condition. Find out more and download our employment factsheet.
Growing older: Advances in our understanding of CF mean that there are more effective treatments, so people with the condition are living longer than ever. Explore our information and advice about the associated health, nutrition, fertility, social and emotional issues.
Contact detailsPhone number:
020 3795 1555
Cystic Fibrosis Trust UK Headquarters One Aldgate, Second Floor